Julia Eleni Stathopoulos
Please know that this is being written by Julia’s dad as she did not have time to complete this page. Many of you know Julia personally but I know others only know her through a friend. Let me tell you a little about our Julia. She is 14 years old, an 8th grader who attends Jay M. Robinson Middle School. She has a strong faith as a Greek Orthodox Christian and derives much peace from her belief in guardian angels and holy saints. If you ask her she may share with you her special experience during her travels to Greece in the Summer of 2006, a remarkable story of her seeing and speaking with a young girl in the presence of her family but only Julia could see this young girl – we can only try to explain it as a spirit from heaven, a guardian angel or saint. It was a life-changing experience for Julia and us.
Julia loves to hang out with friends, play video games (especially Wii), watch movies, draw (wonderful artist), listen to music on her Ipod and watch Panthers football games and Tarheel basketball games (a closet sports nut). She also loves to travel having seen more of the world than I ever will and besides her many travels in the US to the northeast, visiting her mother’s ancestral home in Sandwich, Mass, Cape Cod, Boston, New York, Philadelphia and more, Florida (yes Disney World more than a few times), Houston, Texas (yes, she made us take her to the Super Bowl a few years ago), she has visited her father’s ancestral home in Greece, and also traveled to England, France and Belgium with her grandparents Brown.
Julia has one sister, Christina, two brothers, John and Nicholas, and one dog she madly loves named Buddy (see the picture on this site). By the way, Buddy is very protective of Julia and chases her brother Nicholas whenever he starts a sibling fight. Julia’s sister and brothers have experienced more than most as they have traveled with Julia through her challenges. It has given them a different perspective on life. Julia was born with a rare medical condition known as Freeman Sheldon Syndrome. From birth she has had multiple surgical procedures on her hands, feet and legs and various therapy to strengthen her. Somehow she has managed to play soccer and basketball and cheerlead each year as a Junior Topcat when doctors told her that she would have difficulty walking much less participate in athletics. She now faces her most challenging surgery with spine correction and fusion that she has been helping plan over the past year during her many trips to Chapel Hill. This was inevitable as her “S” spine curve has worsened over the past 3 years. The hurdle Julia has been working on for a number of years is weight gain – this has been a struggle. After her spine surgery was postponed in June and September, we proceeded with another surgical procedure in late August that involved a special line that runs from a vein in her arm into her heart region and she receives a special nutritional formula intravenously 12 hours each day. This ultimately helped Julia reach her goal of 50 pounds. Since late August Julia has gained 20% of her body weight or 10 pounds and she reached a top weight of 52.2 pounds. This gave Julia’s parents and medical team more comfort going forward with the spine surgery.
During her many trips to Chapel Hill this past year, Julia has fallen in love with UNC and says she wants to attend college here. By chance she has met Coach Dean Smith and former Tarheel player Sam Perkins during her visits to UNC. She has her favorite restaurant already picked out – Franklin Street Pizza. She wants her brother John to come to UNC so that they can live together in an apartment. She has it all planned out.
Those who know Julia know that she is an inspiration to her parents, sister, brothers, family and friends. Julia has been fortunate to have very supportive siblings and grandparents, and much love and support from her extended family, cousins and all, godparents, and friends. Through her many trials and tribulations, never has Julia uttered words of self-pity, truly not even once. This helps describe her in a nutshell.
I know Julia will be back to change this page as she begins her recovery but I am glad I had this chance to share with you a few things about a special person.
Dad, November 14, 2007
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1.
Annie Spence | November 12, 2007 at 7:35 pm
Hey Julia! Can u see this? I hope it works because im gonna be leaving A TON of notes for you! haha lol! Lotsa love ~Annie
2.
chris chagaris | November 13, 2007 at 5:58 pm
Hey Julia,
Can’t wait for you to get back home. Your dad promised me that he is going to bring you and Nicholas up to my house so we can go fishing and tubing. He said something about using Nicholas as bait. Not sure what he meant by that. I am glad you are at Chapel Hill because it’s the best school in the Carolina’s. Remember there is only one Carolina and it’s in Chapel Hill. Give your Dad and Mom a Go Heels for me.
talk to you soon
3.
Allie Brown | November 13, 2007 at 7:07 pm
Hey Julia! Awww man I am not the first one to leave you a comment. Oh well. We all miss you and we know that everything will go great tomorrow. Can’t wait to see you soon!
Love ya, mean it!
*Allie Brown* (Just in case you know more than one allie)
4.
john f | November 13, 2007 at 7:16 pm
Julia
Hope this gets thru. Will keep you in our thoughts and prayers. You are strong in spirit and mind.
Love john and barb
5.
Annie Spence | November 13, 2007 at 7:57 pm
Hey Julia! It’s me again! Just like I promised! Anyway, be strong tomorrow (you always are) and we will all keep you in our minds as we go through the day. You will do great!
LOTSA love, Annie
6.
Virginia B. Lee | November 14, 2007 at 11:22 am
Hello Julia
I am Emily Beatrice’s great grandmother. Along with your very nice family, I wish you well with your needed surgery.
It helps to have a loving family with you in your time of need. Maybe soon you and I can get to really know each other.
Hope to see you soon.
A friend, Ginner.
7.
George Stathopoulos & Family | November 14, 2007 at 5:23 pm
Little Julia, We pray all is progressing very well and with all the prayers being done the outcome will be positive. Vivian can’t wait to speak with you soon. I hope Mom, Dad, and siblings will smile soon! God Bless you Baby and may the little Angel guard you well through this path.
With all our love, George, Janet, Vivian, John, & Chris Stathopoulos
8.
Annie Spence | November 14, 2007 at 8:01 pm
Hey Julia! The word of your surgery spread at school today and we are all praying and wishing for your successful surgery. I know that it will all go well and I cant wait to see you soon! LOTS of love, Annie.
9.
Karlie Ebersole | November 15, 2007 at 6:54 am
Hey Julia!
If you don’t remeber I met you in Philedelphia when we were like 2 or 3. When my mom found this page I was so excited to see what you looked like. We could seriously be twins! If you haven’t caught on I have FSS too. I just like to check my bases to make sure everyone knows what I’m talking about. Anyway I have to hurry… the bus will be here any minute. Best Wishes and I’ll keep you in my prayers!
Long Lost Friend
Karlie
10.
Allie Brown | November 15, 2007 at 3:54 pm
Hey Julia,
I heard your surgery was over so I decided to write you another message. You are the strongest person I know and the only one that could go through this surgery and all of the past surgerys that you have had and keep a smilie on their face. Strength is measured by the will to keep going strong and with optimism. I cant wait to hear from you. Write as soon as you can because I need to hear from you. Stay Strong! Love Ya lots!
*Allie Brown*
11.
Deme Tsikles | November 16, 2007 at 12:32 am
Hi Julia!
Taos told me you were having surgery. Get well soon koukla! ! We love you!
And we are praying for you!!!
Demetra Tsikles & Teddy Poulos
12.
Stoumbos Kim and Tom | November 16, 2007 at 7:19 am
You are in our prayers Julia and we pray you heal soon and return to your family and friends healthy and strong!!! You are such a beautiful girl and an inspiration to all that are struggling with health problems…
Our love
Kim, Lia, Tom
13.
John Anderson | November 16, 2007 at 10:13 am
Julia,
We have never met but I grew up with your father. However, I have seen you you cheer as a Junior Topcat and remember what a great job you did. I just want you to know you are in my thoughts and prayers and I hope you have a speedy recovery.
John Anderson
14.
Mr. Tobin | November 16, 2007 at 12:14 pm
Julia,
Wow!! What a great family and support you have for your surgery! I know you will do well and I can’t wait to see you roaming the halls of Robinson soon! Make sure your parents keep us posted on your recovery!
Mr. Tobin
15.
Ms. Wheeler | November 16, 2007 at 12:41 pm
Hey Julia, I know that you are in great hands and are healing quickly! I am thinking about you and praying for you each day. I bet you are going to grow a few inches like I did from the surgery!
Good luck, and I will check on you daily. Oh, by the way, I got married last week and my new last name is Jenner (but you can call me Ms. Wheeler!)
Love
16.
Mrs. Joffe | November 16, 2007 at 1:31 pm
Julia,
Cheerleading has not been the same without you. Your wonderful smile and positive attitude were a highlight of my day, whenever I would come into practice. We are all praying for you and can’t wait to see you soon.
Coach Joffe (Moyer) – I got married!!
17.
Norma Hepburn | November 16, 2007 at 1:47 pm
• Julia,
Julia, I am sending this a 2nd time. Not sure I did it right the first time.
I knew you could do it. I am so very proud of you. I prayed for you all day Wednesday. You are definitely one of a kind and some kinda a special.
Good luck, one step at a time. Just keep that attitude and you will show it that you are the boss and in charge!
luv ya
Nurse Norma
18.
Pete J Pappas | November 16, 2007 at 4:31 pm
Hey Julia,
Hope everything went well. I am pray for you everyday. Let me know and ill bring you some hotdogs. Ha Ha…
With love,
Pete J Pappas
19.
Julie Griggs | November 16, 2007 at 4:46 pm
Hello Julia,
Thank you for giving me an opportunity to add my note of encouragement to the growing number of messages on your blog. I am a friend of your parents, and I remember seeing you for the first time when you were only 1 day old. You were a beautiful baby, and you have grown even more beautiful every year. Your challenges have been and continue to be very great, and yet your gracefulness does not falter. Your life is an inspiring and interesting story, and you have helped people by sharing it. I hope my prayers, and those of many, many others–I dare say continuous–for you will give you help when you need it in the days ahead. Sincerely, Julie Griggs
20.
laura denhart | November 16, 2007 at 6:02 pm
Hello! i am one of christina’s friends and i must tell you that your story, Julia, is absolutly inspiring. i know you have overcome many obstacles and i admire you for it. keep reaching for the stars and know that you are in my prayers.
21.
Johnny Katopodis | November 16, 2007 at 6:58 pm
Hey Julia! Your still in my prayers and now I wish you a speedy and complete recovery. As much as it hurts to say this…GO PANTHERS!! Even though I’m not at Art’s BBQ anymore, I will still meet you there for a grill cheese and hush puppies!!
22.
Yiayia-Vivian Stathopoulos | November 16, 2007 at 7:12 pm
Julia, I am doing this for your Yiayia, my mother Vivian.
Julia, I love you to much, forever, up to God!!! Everybody loves you forever. Get well soon!!! I will see you the next few days. I know you are strong…be strong more with God. Yiayia Vivian
23.
Chris Stathopoulos | November 16, 2007 at 7:16 pm
Hi Julia, I know that the Lord GOD is with you. He answered the prayers of weight gain. Now he is answering the prayers of this time. The prayers of many go straight up to GOD. I love you Koukla!!!
God Bless You Abundantly,
Uncle Chris
24.
Chris Stathopoulos | November 16, 2007 at 7:32 pm
Julia, This is from Yiayia Vivian. I am doing this for her.
Julia, I love you too much….up to GOD!!! I miss you! I will see you soon in the next few days. I know you are strong…..may GOD give you more strength!!!
I LOVE YOU,
Yiayia Vivian
25.
Brenda Gibson | November 16, 2007 at 10:28 pm
These are the toughest days you’ll endure . . . keep the faith! I remember Karlie going through some of the very same struggles after her surgery and finding myself feeling some of her pain too. Focus on next week, you are sure to see (and feel) so much improvement!
26.
Karlie Ebersole | November 17, 2007 at 5:19 pm
Julia,
I wanted to let you know that I have been checking this more than once a day to keep up to date on how well you are doing. I don’t know when you’ll read this because when I was in the hospital I had a computer that I could use as I sat in my bed (kind of like the adjustable tv stands at most hospitals) and I didn’t use it but once which was on the last day because of how uncomfortable I was. Anyway to get to the point, I wanted to let you know I kinda started my own page like yours to show you a recent picture of me since I’ve now seen so many of you. It is at http://www.karliesblog.wordpress.com and although there isn’t much on it I atleast have the about me section filled out and I have two pictures of myself that I put on there as I was creating the page. Anyway, I am so excited to get to know you better now that I have learned that you are a good artist and I read the poem that you wrote. I write poetry everyday along with songs and I absolutely love art! I you go to my page you can read more but for now I will keep you in my prayers and wish you the best.
TTYS (talk to you someday… lol) ,
Karlie
27.
Annie Spence | November 18, 2007 at 8:29 am
Hey Julia!
I have been checking the site frequently and I am soooooo happy that you are progressing and hopefully feeling much better! I cannot wait til you can come home so I can see you! So get well soon! You are SO STRONG and I know you are able to do anything!
Lotsa love and prayers, Annie
28.
Gabrielle | November 18, 2007 at 4:19 pm
Hey Julia.
It’s Gabrielle from church. I’ve been praying for you and so has my Girl Scout troop. I can’t wait to see you.
Love Gabrielle
29.
Karlie Ebersole | November 18, 2007 at 5:03 pm
Julia,
It’s me again. I just wanted to let you know that I’m glad that you are showing some improvement and I wanted to let you know that I have been praying for you every day. I know all the prayers that you are recieving are going to do you great good as you start to heal. I wish you the best and lets hope you can get out of the ICU soon… even though home would be better. Still goodluck with your recovery and i can’t wait to hear from you when you are out of the hospital and this whole thing is just a blur in your mind (i can’t even remember being in ICU and trying to communicate with my parents. but i did). I’ve noticed that you have a lot of friends that seem to care about you and that is the best thing you can have at our age.
BEST WISHES (again)
karlie
30.
The Katsaduros Family | November 18, 2007 at 6:26 pm
Hey Julia,
My family is praying for you all day and night. We miss you and we hope you get through this. Soula and Alex talk about you all the time at sunday school and at school with taylor and alexandra. We love you and Soula and Alex pray for you and they can’t wait for you to come back to sunday school. Mrs. Rena cryed today while reading about julias pains everyday she hopes you feel better and can’t wait to see you again!!
We ♥ you Julia
Can’t wait to see you at church, we pray and think of you all the time. Trust us.
Hope your mom and dad get through it like you will i believe in you julia.
The pain will go away if you believe you will get through it.
31.
Lea Raptis | November 18, 2007 at 8:11 pm
Hey Julia!
I know you and your family are going through a hard time right now. I just wanted to say that your a very brave person and very strong. You have a lot of courage and I admire you for that. I just wanted to let you know that we talk about you all the time in Sunday School. We look forward to seeing you soon. I wish you the best and I know you are going to have a full recovery. You are in my thoughts and prayers every night. We miss you in Sunday School.
With Love,
Lea
32.
Moira Alfieri | November 19, 2007 at 1:21 pm
Hi Julia,
I’m John’s friend, Patrick’s, mom. You are quite the courageous young lady! I hope you are feeling the prayers all the way from Ohio! With the foundation of love and strength you have in your family, you will be triumpant!
~~May His Peace be with you and your family~~~
Mrs. Alfieri
33.
Athena Barteldt | November 19, 2007 at 9:31 pm
hey Julia,
You probably don’t know me, but I’m in your Sunday school class. We thought about you in class this Sunday, and I just wanted to say we all love you and are praying for you and you are always in our hearts. I look up to you so much, you’re so brave and strong.
we love you<3
34.
xexpressiongirlx | November 19, 2007 at 10:07 pm
This is me Karlie writing to you once again and I don’t blame you if you find me an annoyance. I just wanted to say that I am very happy for you that you are beginning to heal more and say that it was SWEET how you got a message from the Tarheels basketball team. I bet that really brightened up your day not to mention your week. I think all of our prayers are finally being answered and you are going to be home very soon. I hope that you get better and you will finally get your mashed potatoes and gravy. Yumm!! lets just hope that the potatoes and gravy are one of the better tasting items on the hospital menu, unlike the plastic toast… lol.
*Still Praying* Can’t wait to get in touch with you!
-Karlie Ebersole
35.
Becca Johnson | November 20, 2007 at 9:58 am
Hi Julia,
I’ve been keeping up with your progress and I just can’t believe what a strong, amazing person you are. We will be so happy to see you back at school!
Ms. Johnson (Robinson Middle)
36.
Gordon | November 20, 2007 at 11:52 am
Julia,
You have the face of a princess and the heart of a lion. We gain from your strength and attitude and wish you a speedy recovery
.
The Lowmans
37.
Allie Brown | November 20, 2007 at 7:53 pm
Hey Julia,
I am so happy that you are out of ICU and feeling better. Everyone is thinking of you and waiting to hear from you. We can’t wait to get another update and hear how everything is progressing and getting better. Love Ya lots!
*Allie Brown*
38.
Karras Family | November 20, 2007 at 8:09 pm
Julia, Harry, Regina, Christina, John, and Nicholas
We are glad to hear that Julia is out of ICU. We have been keeping up with your journal and appreciate you keeping us posted of Julia’s progress.
Julia you definitely have our families determination. “Stathopoulos”. We love you and our prayers are with all of you.
Love,
Thea Evanthia, George, Helen, Vasilis, and Evelyn Karras
39.
Annie Spence | November 20, 2007 at 9:39 pm
Julia,
I am SOOO happy that you are out of ICU! Keep feeling better and staying positive! When you get home I will have a HUGE plate of mashed potatoes! Get well SOON!
Also, I want to say that I am praying for Micah and cant wait to get an update on his progress. He sounds like a pretty strong guy and will hopefully pull through.
Lots of love, Annie
40.
Rena Koufaliotis | November 21, 2007 at 7:36 am
Julia,
We are thrilled to hear about your progress. You continue to stay in our thoughts and prayers. What we really hope is that you finally get some mashed potatoes for Thanksgiving! Your strength and faith is amazing and we have all learned what Thanksgiving is really about through you. May God continue to Bless you and your family.
With Much Love,
Rena, George, Thomas & Harry Koufaliotis
41.
xexpressiongirlx | November 21, 2007 at 7:29 pm
Once again it’s me and since tomorrow is thanksgiving and i probably won’t b able to get on the computer then I wanted to say… HAPPY THANKSGIVING!!!!! I bet ur happy that you can atleast eat on thanksgiving. I am glad that everything is getting so much better. OO yea and what a coincidence… i had a wendy’s in the hospital i was in and my mom brought me a small vanilla frosty everyday only i never ate it all so that is probably why she bought one every day… jk lol. Anyway keep up the good recovery!
sincerely
Karlie Ebersole
42.
ehaske01 | November 22, 2007 at 8:06 pm
Hi Julia, We hope you are feeling much better by now! We need you to get strong so you can help cheer on John’s basketball team at church. Our thoughts and prayers are with you and your family for your speedy recovery. See you at the games and have a Happy Thanksgiving. Love, Kevin, Elaine, Stephen and John Haskell
43.
Meredith Fulton | November 22, 2007 at 10:21 pm
Julia,
I’d be more than happy to give you a tour! 
You do not know me, but i was reading an update on your page in regards to Micah who is staying down the hall from you. A girl I go to church with is having a hard time because of Micah’s critical condition, and i wanted to find out how he was so i can do my best to comfort her. Then i found myself reading your entire journal. I just wanted you to know, I’m a freshman at Carolina, (that in itself caught my attention! good for you loving the heels! you chose the right team!) and i love it and UNC is definitely the place to be, in all aspects of life. But, I used to work at a Therapeutic Horseback Riding Ranch outside of Concord called Wings of Eagles Ranch, and there was a girl there that had your same condition. You seem like such a remarkable and inspiring girl! I know you will be just fine and i wish you the best! Work hard, and i just know that you’ll be at UNC in 4 years
44.
Karlie Ebersole | November 23, 2007 at 1:56 pm
Julia
I am so happy to see that you are recovering soo well! I hope that you feel up to typing soon. I am still keeping u in my prayers.
Sincerely.
Karlie
45.
Georgette and Pete Boukidis | November 23, 2007 at 11:14 pm
Hi Julia,
We just read your story and will be praying for you and your family. You are an example for all of us! We are so happy you are making so much progress, and we can’t wait for you to come home.
All our love,
Pete, Georgette, Andrew and Meredith Anne
46.
xexpressiongirlx | November 24, 2007 at 11:17 am
I know that i have like everyother message on your comments and i know that i might have even found that annoying but I was just so excited that you finally felt up to writing on your blog! It took me a while to want to do anything too and i know what you mean about how little things can make u tired… I feel your pain
I hope that we can get in contact soon either by phone or email or maybe sometime soon actually meeting
I put my blog address above and if u click on it u can c my pic
I can’t wait to talk to you and for you to feel good enough to get home and out of the hospital,
KEEP HEALING!
-Karlie Ebersole
47.
Maria Evangelou McCourt | November 26, 2007 at 11:31 am
Hi Julia,
You don’t know me, but I’m the 6th grade guidance counselor at Jay Robinson. I just moved to Charlotte 4 months ago from NYC. I heard about you and your family and wanted to tell you that you are in my prayers. I’m Greek as well and I went to church yesterday (Holy Trinity). The priest mentioned that you are doing well and we all said a prayer for you. You are such an inspirational young girl. I look forward to meeting you. Stay strong.
48.
Shari Cockerham Robinson Middle | November 26, 2007 at 1:42 pm
Hi Julia:
Everyone at school has been asking for updates today on how you are doing. I’m so thrilled that you are up and about and before you know it, you will be home, I’m sure you are so excited thinking about that!
Ms. McCourt (our 6th grade counselor) said she sent you a message, I can’t wait for you to meet her, she’s great! She’s been keeping up with your progress as well, and she’s new to the area and to your church! Miss you and we’ll see you soon!
49.
Annie Spence | November 26, 2007 at 7:49 pm
Hey Julia!
I am so glad to see that you are up and running… (well maybe not running)! But anyway, it is great to see how fast you are improving!
The other night, i think it was Saturday, i was outside and i looked at the sky. In the middle of the big grey mess of clouds was a little patch of carolina blue sky. It reminded me of you in the way that throughout this whole ordeal, there is always a positive looking place, or refuge, that is in the distance, but not out of reach. A little while later, the patch got bigger, which could symbolize how you will soon be much better and able to come home. I don’t know if that made any sense, but when i saw that i thought of you so i wanted to say it.
Get well soon! Lots of love, Annie
50.
Peroulas Family | November 27, 2007 at 4:53 pm
Julia the whole family has been following your progress and are so happy that you are finally able to go home. It has taken a lot of courage to share your thoughts and feelings during such a difficult time in your life. Sometimes we lose focus on what really is important in this world, so seeing the way you have stayed positive through all this has been humbling for us. Our thoughts and prayers will remain with you….
51.
Vicky Lawler | December 1, 2007 at 10:35 am
Dear Julia,
I am Jimmy Lawler’s mom and just found out about your surgery. I’m sorry I did not know, but somehow you were in my prayers anyhow, because I always pray for those I care about, and I knew you were a special gift from God when I met you. You have a beautiful aura about you. My whole family is keeping your recovery in our prayers and wanted you to know this. May you have the best Christmas ever with your family. I saw John the other night when they came to practice for the Academy team. Please give your family our best also. Vicky Lawler
52.
Gabrielle | December 2, 2007 at 9:08 pm
hey julia
i miss you so much at church. i have not seen you since the greek fest, i can’t wait to see your smiling face again. i tried calling you over the past few days, and i left you a couple messages. i’ve been praying for you and thinking about you since the day i found out about your surgery. love ya lots!
gabrielle stavropoulos
53.
xexpressiongirlx | December 3, 2007 at 6:48 pm
Hey julia
I just wanted to say that I am glad you are home making a good recovery and getting through this and that I hope to hear from you know that you are feeling… somewhat well again. I hope you read this soon.
Karlie Ebersole
54.
Vivian Stathopoulos | January 12, 2008 at 6:18 pm
Hey Julia!!!
How’s it going. I continue to keep you in my prayers. hey, i got a new email address. it is lipgloss.2012@yahoo.com. WOW look how many people love and care about you so much! well, the best to you and all of your family. i’m so happy that everything went welll with the surgery and that you came home safely. Our God is an AWESOME God:) well, i will talk to you soon hopefully! you have to call alot of people. haha.I LOVE YOU SO MUCH!!! mwa
<3333 Vivian
55.
Helen, Carl, Nikolaus & Christopher | April 14, 2008 at 3:17 pm
Hi Julia,
I am your dad’s cousin Helen from Philadelphia. Our entire family would like to wish you all the best. We have always kept you and your family in our prayers and we are so happy to learn that your surgery went so well. Yiayia Youla and Pappou Chriss also wish you well. Tell Mom and Dad its time for a Stathopoulos reunion. We all need to get together soon and have some fun.
We love you,
Helen, Carl, Nikolaus & Christopher
56.
sofia | May 15, 2009 at 3:27 am
kalimera oikogeneia stathopoulos eimai i sofia 28 xronon .
diavasa gia tin joulia kai syginithika .exw kai egw mia aderfi me to syndrom freeman sheldon einai 4 minon kai to anakalipsame edw kai ena mina einai poly dyskolo edw stin ellada giati den to xeroune auton ton syndromo . an sas einai eukolo tha ithela na me boeithisetai se kapoies erwtiseis pou exw i kapoia pragmata pou tha prepei na xeroume gia auton ton sydromo gia na boeithisoume auto to mwraki na zeisei kala . eida tin joulia stin fotografeia kai pira kouragio .edw stin ellada den xeroune tipota gia ton sydromo freeman sheldon .sas euxaristo poly
sofia mavrou .
57.
sofia | May 20, 2009 at 3:20 am
kalimera harry & regina stathopoulos .kalytera na meilame ellinika .eimai i sofia egw eimai padremenei kai menw sto prigipato liechtenstein .
i aderfi mou me ton syndrom freeman sheldon einai stin ellada tin lene marianna twra pali tin balane sto nosokomeio …exei poly megalo problima me to anapneustiko dyskolebete na faei na anapneusi kai bgazei polla salia prwta prepei na therapeutei to anapneustiko kai meta ta ypolipa .
i joulia eixe teteio problima?kai an eixe pws to adimetopisate ?
eseis kanate kapies therepies apo mwro i prepei na perimenoume na megalwsei?signwmi an kanw polles erwtiseis …euxaristw poly .
sofia mavrou …
58.
Vasilios Pournaras | June 26, 2009 at 9:02 am
Julia, you do not know me but I heard about your amazing story from your older sister. My son is suffering from Neuroblastoma, a rare cancer in children, and he is only 3 yrs. old. From reading your story you gave me hope that with strength, faith in God, and the will to live, all things are possible. I am encouraged by your story, and my family and I will pray for you every day! Keep up the fight and God bless you all.
Vasilis
59.
juliastat | August 16, 2009 at 7:14 pm
Thank you Mr. Pournaras. My faith, my family and hope all encourage me each day. I have been blessed with a great mother and father, and they love and support me more than I could ever have wished for. I hope God blesses your son and heals him. Please let me know how he is doing. I leave tomorrow for UNC children’s hospital for a surgery that I will have on my left foot this Tuesday. I hope to be back in Charlotte by the end of the week and will have a cast and therapy for about two months.
God bless you and your family.
Julia Eleni